A Montrose Lyme disease sufferer is joining protestors in London who are ticked off by “inadequate” tests for the disease.
Lorraine Murray believes she was infected after being bitten by a tick in August 2014 while walking her dog in Kinnaber Woods.
The 44-year-old says she had no bulls-eye rash she was aware of and was misdiagnosed as having chronic fatigue syndrome and ME by doctors.
She said: “For the first six months my symptoms were cyclic flu, fever, nausea, a stiff neck, eye and ear sensitivity, chronic fatigue, progressing on to difficulty walking, low blood pressure and numerous other symptoms.
“I was very ill every single day and hardly able to get out of bed and once the disease got a hold it was like wakening up with the flu everyday, along with all the other symptoms.
“It was horrendous.
“In the end I diagnosed myself according to symptoms and then got a clinical diagnosis from my GP, I have tested positive for Lyme borreliosis.”
Lorraine said after the NHS failed to diagnose her with the current Lyme disease test she took matters into her own hands and sought private testing and treatment.
She currently takes 30-plus supplements and tablets.
Lorraine said: “I am currently in the sixth month of private treatment, which I fund myself. Not everyone can afford this treatment, so unfortunately spend the rest of their lives very sick and a lot are wheelchair-bound.
“I suffered for 16 months, so I am trying to raise awareness in the public of the early signs of Lyme disease.
“More needs to be done to raise awareness of the symptoms of Lyme disease in humans and raising public awareness of this dreadful bacterial infection.”
Lorraine will join other Lyme disease suffers on May 24 for a protest in Parliament Square in London to highlight “the current inadequate NHS test for Lyme, poor diagnosis by GPs and insufficient treatment for this awful disease”.
They are also calling for Lyme borreliosis to be made a schedule one notifiable disease, so accurate figures of Lyme disease cases are known.
A petition to the government has been signed by more than 10,000 UK residents.
Lorraine said: “The Government should investigate Lyme disease as 3000 new cases a year is probably only the tip of the iceberg. There should be UK Guidance – too many doctors and consultants are still unaware of Lyme disease.”
Lorraine added anyone who feels they may be suffering from Lyme disease can get in touch with her by emailing firstname.lastname@example.org