An Angus boy who suffers from one of the rarest illnesses in the world is urging you to get your skates on to help cure the condition.
A roller skating event is being held at Forfar Indoor Sports this Saturday, September 3, in aid of four-year-old Blake McMillan from Carnoustie.
It will be the last chance to pull on your roller boots before the ice is laid for the new season.
Blake suffers from MeCP2 Duplication Syndrome – he’s only the fifth boy in Scotland to be diagnosed.
It occurs almost exclusively in males and is characterised by moderate to severe intellectual disability. Most people with this condition also have weak muscle tone in infancy, feeding difficulties, poor or no speech, seizures, and muscle stiffness. Individuals with MeCP2 Duplication Syndrome have delayed development of motor skills such as sitting and walking and some suffer from severe recurrent respiratory tract infections, often leading to pneumonia. This is a major cause of death in affected individuals, with almost half dying by the age of 25. Blake’s family work tirelessly to raise money to fund research into MeCP2 Duplication Syndrome.
Denise Black, organiser of the event said: “Blake has a special place in my heart. His mummy Jenny is amazing and works so hard to raise funds and I just like to do my little bit. I feel good knowing I can help make a difference to Blake and others lives by raising as much money as possible. Please come along for a fun day to raise much needed funds for this cruel condition.”
Blake’s mum Jenny said: “My life revolves around caring for my children and trying to raise funds to cure my son of this dreadful condition. It is just wonderful when individuals take on an event for me. It is a lot of work coordinating events, so when Denise offered to arrange the roller skating event, I was over the moon.”
Get your skates on for Blake runs from 4 to 6 pm. Mike Ferguson at Forfar Indoor Sports has kindly agreed to donate half of every £5 entry fee to Blake. Burgers and hotdogs will be on sale; there will be face painting, a raffle and a bar for spectators. Bring your own roller skates or hire at the venue. £470 has already been raised from the DUFC bonus ball hospitality package donated by David Mullholland at United for All.